Σύνδεσμοι για Νευροαναπτυξιακές Διαταραχές
Autism Organizations Worldwide Maintained by Action for Autism, India. This page is a list of national (and in some cases, regional) autism organizations. In many countries of the world, organizations have not yet been formed. Therefore, we have also included the names of individual contacts who may be able to provide names and addresses of services in countries where organizations have not yet started. We began this list in 1994 and continue to actively maintain it because we believe that autism must be conceptualized and recognized as a disorder that affects children and families throughout the world.
International Society for Autism Research (INSAR) The International Society for Autism Research (INSAR) is a scientific and professional organization devoted to advancing knowledge about autism. INSAR was formed in 2001 and is governed by an elected, volunteer Board of Directors who oversee all functions of the Society. Various committees assist the Board in carrying out the mission of the Society.
American Association on Intellectual and Developmental Disabilities (AAIDD) Since 1876, the American Association on Intellectual and Developmental Disabilities (AAIDD) has been providing worldwide leadership in the field of intellectual and developmental disabilities. We’re a powerful community of leaders with a strong voice and important mission. AAIDD, (formerly AAMR — American Association on Mental Retardation) is the oldest and largest interdisciplinary organization of professionals and others concerned about intellectual and developmental disabilities. We’re tireless promoters of progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities. With membership over 5,000 strong in the United States and in 55 countries worldwide, AAIDD is the leader in advocating quality of life and rights for those with intellectual disabilities.
Society for Research in Autism Spectrum Conditions (WGAS), Germany The WGAS is devoted to supporting basic and applied autism research primarily in Germany, Switzerland, and Austria. Among other things, the WGAS meets this goal through producing scientific publications, facilitating events such as the Scientific Meeting for Autism Spectrum Conditions (WTAS), promoting networking among colleagues active within the autism field, and the formation of professional groups. We also provide training and continuing education for researchers, support for junior scientists, and sponsorship of awards for outstanding research contributions. You can find more information on these topics, on different types of memberships, and on possible ways of financially supporting our organization on this website.
Autism Speaks Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Recognizing the need for a powerful voice Bernie Marcus donated $25 million to help financially launch the organization. Building upon the legacy of three leading autism organizations, Autism Coalition for Research and Education (ACRE), the National Alliance for Autism Research (NAAR) and Cure Autism Now (CAN), who merged with the organization, Autism Speaks has made extraordinary advancements in the autism community. Chief among these are increased global awareness of autism, better understanding of the breadth of the autism spectrum, and advocacy to increase research and access to care and support. Today, Autism Speaks is dedicated to advancing research into causes and better treatments for autism spectrum disorders and related conditions both through direct funding and collaboration.
Ελληνική Εταιρία Προστασίας Αυτιστικών Ατόμων (Ε.Ε.Π.Α.Α.) Το Νοέμβριο του 1992, 80 γονείς αυτιστικών ατόμων από την Αθήνα, τον Πειραιά, το Ηράκλειο Κρήτης, το Βόλο, τη Λάρισα, τα Γιάννενα, την Κοζάνη, τη Βέροια και τη Θεσσαλονίκη, ίδρυσαν την Ελληνική Εταιρία Προστασίας Αυτιστικών Ατόμων (Ε.Ε.Π.Α.Α.), σκοπός της οποίας είναι, «να εργαστεί για τα δικαιώματα των ατόμων που εμφανίζουν το σύνδρομο του αυτισμού και άλλες συναφείς καταστάσεις στις οποίες τα αυτιστικά στοιχεία προέχουν και καθορίζουν τις ανάγκες της καθημερινής ζωής, της εκπαίδευσης, της θεραπείας και της δια βίου Προστασίας». Σήμερα, η Ελληνική Εταιρία Προστασίας Αυτιστικών Ατόμων έχει περισσότερα από 850 Iδρυτικά και Τακτικά μέλη, που είναι γονείς αυτιστικών παιδιών, σχεδόν από όλη την Ελλάδα, 4 Συνδεδεμένα μέλη, που αποτελούν τοπικούς συλλόγους γονιών στην Αθήνα, στη Λάρισα, στον Έβρο και στα Χανιά, Παραρτήματα στη Θεσσαλονίκη, στα Ιωάννινα, στο Βόλο, στην Πάτρα και στη Χίο, περίπου 210 Αρωγά μέλη, ανάμεσα στα οποία είναι 40 Ψυχίατροι – Παιδοψυχίατροι, Ψυχολόγοι, Παιδαγωγοί, Κοινωνικοί Λειτουργοί, και άλλοι Ειδικοί Επιστήμονες και Πανεπιστημιακοί δάσκαλοι, που συνιστούν ένα Διεπιστημονικό Τμήμα για τον Αυτισμό που στηρίζει επιστημονικά το έργο της Εταιρίας. Επίτιμα μέλη του Επιστημονικού Τμήματος είναι διακεκριμένοι επιστήμονες από την Ευρώπη και την Αμερική, όπως ο Eric Schopler, professor of the University of North Carolina School of Medicine USA, η Rita Jordan, professor of the University of Birmingham School of Education UK, η Dr. Lorna Wing, o Dr. Theo Peeters, ο Dr Michael Rutter κ.α. Για την ενίσχυση των προσπαθειών της και την πραγματοποίηση των σκοπών της, η Ε.Ε.Π.Α.Α. επιδίωξε και πέτυχε τη συνεργασία με το Ευρωπαϊκό και το παγκόσμιο κίνημα για την προστασία των αυτιστικών ατόμων. Εκπροσωπεί την Ελλάδα στην Ευρωπαϊκή Ένωση Αυτιστικών Οργανώσεων Autism- Europe, στην οποία συμμετέχουν οι εθνικές οργανώσεις αυτισμού των χωρών της Ευρωπαϊκής Ένωσης, αλλά και άλλων ευρωπαϊκών χωρών, όπου συμμετέχει ενεργά με το μέλος του ΔΣ Καθηγήτρια κα Μπονάνου Σοφία. Συμμετέχει επίσης στο Διοικητικό Συμβούλιο της Autism Europe και στο Διοικητικό Συμβούλιο της Παγκόσμιας Ένωσης Αυτιστικών Οργανώσεων World Autism Organization, με τον Επίτιμο Πρόεδρο κ. Αλεξίου Χρίστο, ο οποίος είναι Αντιπρόεδρος, εκπροσωπώντας τις Ευρωπαϊκές Οργανώσεις για τον Αυτισμό. Επίσης συνεργάζεται με το ελληνικό αναπηρικό κίνημα, και είναι μέλος της Πανελλήνιας Ομοσπονδίας Γονέων και Κηδεμόνων Ατόμων με Αναπηρίες (ΠΟΣΓΚΑμεΑ) και της Εθνικής Συνομοσπονδίας Ατόμων με Αναπηρία (ΕΣΑμεΑ)
National Autistic Society, UK Founded in 1962, we are the UK’s leading charity for autistic people and their families. Our goal is to help transform lives, change attitudes and create a society that works for autistic people.
Autism Science Foundation, USA The Autism Science Foundation was founded in 2009 as a nonprofit corporation organized for charitable and educational purposes. The Autism Science Foundation’s mission is to support autism research by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing and disseminating autism research. The organization also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism. Our organization adheres to rigorous scientific standards and values. We believe that outstanding research is the greatest gift we can offer our families. Every research dollar counts.
Autism Society, USA The Autism Society of America has been improving the lives of all affected by autism for over 50 years and envisions a world where individuals and families living with autism are able to maximize their quality of life, are treated with the highest level of dignity, and live in a society in which their talents and skills are appreciated and valued. We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates. Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, the Autism Society is the leading source of trusted and reliable information about autism. Through its national network, the Autism Society has spearheaded numerous pieces of federal, state and local legislation, including the 2006 Combating Autism Act, the first federal autism-specific law. The Autism Society’s website is one of the most visited websites on autism in the world and our on-line resource database, Autism Source™, and National Contact Center (800-3-AUTISM) provide information and service referrals to thousands of people each year.
Asperger/Autism Network, USA The Asperger/Autism Network (AANE) helps people with Asperger’s or similar autism spectrum and neurodiverse profiles build meaningful, connected lives. We provide individuals, families, and professionals with information, education, community, support, and advocacy — all in an inclusive atmosphere of validation and respect. AANE (Asperger/Autism Network), one of the first Asperger-focused organizations in the United States, was founded in 1996 by a small group of concerned parents and professionals, shortly after the diagnosis of Asperger Syndrome (AS) first appeared in the U.S. Diagnostic and Statistical Manual, edition IV (DSM-IV). AANE builds a supportive community by providing education, information and referrals to individuals with AS, their extended families, and the professionals who work with them.
Association for Science in Autism Treatment (ASAT) We promote safe, effective, science-based treatments for people with autism by disseminating accurate, timely, and scientifically sound information, advocating for the use of scientific methods to guide treatment, and combating unsubstantiated, inaccurate and false information about autism and its treatment. Since autism was first identified, there has been a long history of failed treatments and fads, levied on vulnerable individuals as well as on their families. From the scandal of the “refrigerator mother” theory, to the ongoing parade of “miracle cures” and “magical breakthroughs,” history has been dominated by improbable theories about causation and treatments. Many of these treatments have been too quickly adopted by professionals, too readily sensationalized by the media, and too hastily embraced by hopeful consumers – well before supporting evidence or reasonable probability existed for their effectiveness or safety. Since ASAT was established in 1998, it has been our goal to work toward adopting higher standards of accountability for the care, education and treatment of all individuals with autism.
Organization for Autism Research, USA OAR was founded in December 2001 by seven individuals whose lives and families had been directly impacted by autism. They shared a common vision and set out on a singular mission – to apply science to answer the daily questions and challenges that autism presents to individuals with autism, their families, teachers, and caregivers. There are many organizations dedicated to autism. What distinguishes us from other organizations is our singular focus on applied research and the quality and practical value of its resource materials. The studies we fund and the information resources we provide have meaning in the day-to-day lives of persons with autism and their families. Rather than fund research relative to cause and cure, we funds pilot studies on topics of more every day relevance such as education, parent and teacher training, communication, self-care, social skills, employment, behavior and adult and community issues. In pursuing its efforts to change lives, our ultimate focus is quality of life.
Nelson Lab, Boston Children’s Hospital’s Laboratories of Cognitive Neuroscience, Harvard University, USA The Nelson Lab, founded in 2005 as a part of the Boston Children’s Hospital’s Laboratories of Cognitive Neuroscience, focuses on three distinct lines of research, with the overarching goal of elucidating the relation between brain and behavioral (particularly cognitive) development. The laboratory employs a variety of neuroimaging tools, including the electroencephalogram (EEG), functional Near Infrared Spectroscopy (fNIRS), and Magnetic Resonance Imaging (MRI), along with a variety of behavioral tools, including eye tracking.
Autism Research Center, Department of Psychiatry, @ University of Cambridge, UK The mission of the ARC is to understand the biomedical causes of autism spectrum conditions, and develop new and validated methods for assessment and intervention. The ARC is situated within the School of Clinical Medicine in the Department of Psychiatry, at the University of Cambridge. Under the leadership of Professor Simon Baron-Cohen, the ARC brings together scientists working on autism from around the University of Cambridge and collaborates with prestigious universities around the world, as well as other clinical and voluntary sector services. The ARC has approximately 30 research scientists and support staff, drawn from a range of disciplines (cognitive neuroscience, psychiatry, paediatrics, neonatology, genetics, bioinformatics, endocrinology, proteomics, and biochemistry).
Stanford Autism Center & Research Labs @ Stanford University, USA The Stanford Autism Center at Packard Children’s Hospital is dedicated to providing specialized clinical services and advancing research in Autism Spectrum Disorder. The center is a collaborative of Stanford Children’s Health clinics to provide the latest treatment to children with autism with a common mission: To bring together professionals across departments and disciplines at Lucile Packard Children’s Hospital Stanford (LPCHS), Stanford Hospital, and Stanford University, who are committed to improving the diagnosis and treatment of autism spectrum disorder and related developmental disorders through research, professional training, community education, quality or process improvement, and advocacy.
Marcus Autism Center, USA As one of the largest autism centers in the U.S. and one of only five National Institutes of Health (NIH) Autism Centers of Excellence, Marcus Autism Center offers families access to the latest research, comprehensive testing and science-based treatments. What started as an act of compassion for local children with autism by Bernie Marcus, is today one of the country’s largest clinical centers for pediatric autism. After realizing the difference our center was making for kids with autism, Children’s Healthcare of Atlanta saw potential to combine our efforts to provide top-quality healthcare to all children. In 2008, Marcus Autism Center became a part of Children’s. When it became clear that the transformative work we were doing should be shared nation- and even worldwide, Children’s, and our collaboration with Emory University, helped us make that a reality.
Families and Autism Research Lab (FAR) @ Boston University, USA Research in the Families and Autism Research Lab (FAR) Lab focuses on contextual aspects of autism spectrum disorder (ASD) across the life course, such as family relationships, friendships, and social and community participation, especially during the transition from adolescence to adulthood.
UCLA Center for Autism Research and Treatment, USA The mission of the UCLA Center for Autism Research and Treatment is to elucidate the causes of autism spectrum disorders (ASD) and to develop best practices for diagnosis and more effective treatments. We achieve these goals by fostering a strong collaborative environment for basic and clinical research, and supportive environment for trainees from all disciplines.
Center for Autism Research (CAR), USA The Center for Autism Research (CAR) is a collaborative effort between The Children’s Hospital of Philadelphia and the University of Pennsylvania. Our three-part mission to understand the causes of Autism Spectrum Disorder (ASD) in order to develop effective treatments through research; to serve the needs of individuals with ASD and their family members through education and guidance throughout the lifespan; and to train the next generation of master clinicians and scientists in state-of-the-science best practices for autism screening, diagnosis and treatment. Our multidisciplinary team is made up of psychologists, developmental pediatricians, neurologists, nurses, occupational therapists, social workers, radiologists and computer scientists who are working every day to discover ways to dramatically improve the lives of individuals with ASD and related conditions throughout a lifetime- from infancy through adulthood.
Autism Center @ the Child Mind Institute, USA The Autism Center at the Child Mind Institute is an integrated clinical center and research lab dedicated to supporting toddlers, children, adolescents and young adults with autism spectrum disorder and related challenges, including social (pragmatic) communication disorder and non-verbal learning disorder (NVLD) The Autism Center: Research Lab is focused on understanding the neurobiology of ASD using brain imaging and a range of other clinical and cognitive approaches. A specific goal of the center is detecting autism-related differences in brain connectivity that emerge in early childhood, with the goal of identifying objective biological markers that can one day be used to improve early intervention efforts and the selection of treatments.
Psychiatry Autism Research @ University of Utah, USA The Department of Psychiatry is highly respected and recognized world-wide for its Autism Spectrum Disorder (ASD) research programs. Lead by an exceptional team of interdisciplinary researchers, the mysteries of autism are slowly being understood. By studying genetics, biomarkers, epidemiology, and brain imaging we are learning more about what is happening biologically in children and adults who have autism. Our research is critical to understanding the causes of autism and, ultimately, to developing successful treatments for autism spectrum disorders (ASD).
Kennedy Krieger Institute, USA Located in Baltimore, MD, Kennedy Krieger Institute is an internationally recognized institution dedicated to improving the lives of children and young adults with pediatric developmental disabilities and disorders of the brain, spinal cord and musculoskeletal system, through patient care, special education, research, and professional training.
The Research on Autism and the Brain Lab, Center on Human Development and Disability at the University of Washington, USA The RABLab has been actively involved in autism research for many years focusing on etiology, neuroscience and behavior. Founded by Dr. Raphael Bernier, and our research team includes Principal Investigators and staff from the University of Washington and Seattle Children’s Hospital. Our team is currently conducting a wide range of research studies for both children and adults with ASD at both our UW and Seattle Children’s sites, including Seattle Children’s Autism Center and Seattle Children’s Research Institute.
Autism Research Lab at Sheffield University, UK The goal of the Autism Research Lab at Sheffield University is to have a positive impact on the lives of individuals diagnosed with autism spectrum conditions (ASC) and related neurodevelopmental conditions, via advancements in research. The scope of our research is broad and includes neuroimaging studies aimed at gaining insight into neural and cognitive divergence and applied studies aimed at improving understanding of the lived experience of ASC. By using techniques including psychometric assessments, visual psychophysics, eye-tracking and EEG we aim to further the understanding of the neural underpinnings of behaviour and cognition. Another important area of our work is applied studies. These studies aim to improve the public and professionals’ understanding of neurodiversity through research that raises awareness and breaks down barriers experienced by autistic individuals and those with other neurodevelopmental conditions.
National Professional Development Center on Autism Spectrum Disorder (NPDC), USA The National Professional Development Center on Autism Spectrum Disorder (NPDC) was funded by the Office of Special Education Programs in the US Department of Education from 2007-2014. The NPDC developed free professional resources for teachers, therapists, and technical assistance providers who work with individuals with ASD. Resources include detailed information on how to plan, implement, and monitor specific evidence-based practices.
Autism Spectrum Disorder Information from the National Institute of Mental Health, USA
ADHD Hellas Το Πανελλήνιο Σωματείο Ατόμων με Διαταραχή Ελλειμματικής Προσοχής και Υπερκινητικότητας (ΔΕΠΥ,) με την επωνυμία ADHD Hellas, που προέρχεται από το ακρωνύμιο της διεθνούς ονομασίας της διαταραχής Attention Deficit Hyperactivity Disorder, συστάθηκε το 2009. Ο σκοπός του Σωματείου ADHD Hellas είναι κοινωνικός και στοχεύει να συμβάλλει με τη δράση του κυρίως στη δημιουργία ενός δικτύου υποστήριξης και καθοδήγησης των ατόμων με ΔΕΠΥ και των οικογενειών τους στην Ελλάδα, στην παροχή έγκυρης ενημέρωσης πάνω στα διεθνή επιστημονικά δεδομένα για τη ΔΕΠΥ, στην ευαισθητοποίηση του κοινωνικού συνόλου και της Πολιτείας και στην αναίρεση των προκαταλήψεων για τη ΔΕΠΥ, στην επιδίωξη ευνοϊκών νομοθετικών ρυθμίσεων για τους πάσχοντες στους τομείς εκπαίδευσης και κοινωνικής περίθαλψης καιστην αναζήτηση ολοκληρωμένων λύσεων για την πολυεπίπεδη αντιμετώπιση των ιδιαιτεροτήτων που εμφανίζουν τα άτομα με ΔΕΠΥ.
ADHD Europe ADHD Europe exists to advance the rights and dignities, and advocate for, all those affected by ADHD (and coexisting conditions) across Europe. ADHD Europe has a vision for an inclusive European community, where people affected by ADHD can experience well-being and achieve their full potential, and can also contribute to the well-being of their community and wider society ADHD Europe is committed to combating the stigma, injustice, and intolerance that people with ADHD face in their daily life. ADHD Europe represents the voices of national and regional ADHD organisations from across Europe. Our members are made up of NGOs (Non-Governmental Organisations), Charities, Family Support Groups, and other grass roots organisations, who share similar aims and agendas. In order to be inclusive our general assembley members recently voted to include individual members both patients and professionals During our 2015 AGM. In representing the voices and concerns of people affected by ADHD, ADHD Europe contributes to research, policy and legislation, and practical initiatives, while also disseminating information and supporting affected people and groups, which we do at various levels, from working within EU parliament to supporting our member organisations. The Association promotes evidence based treatment, information and ADHD awareness on a European level, supporting the efforts of its members throughout Europe. ADHD Europe represents a partnership, a community of people and organisations committed to inclusion and social justice for all those affected by ADHD. This is also our vision, one of a truly inclusive European community, where people affected by ADHD are understood, accepted, and valued as contributing members of a diverse European community.
Attention Deficit Disorder Association The Attention Deficit Disorder Association provides information, resources and networking opportunities to help adults with Attention Deficit Hyperactivity Disorder lead better lives. We provide hope, empowerment and connections worldwide by bringing together science and the human experience for both adults with ADHD and professionals who serve them.
Children and Adults with Attention-Deficit/Hyperactivity Disorder, USA CHADD was founded in 1987 in response to the frustration and sense of isolation experienced by parents and their children with ADHD. At that time, one could turn to very few places for support or information. Many people seriously misunderstood ADHD. Many clinicians and educators knew little about the disability, and individuals with ADHD were often mistakenly labeled “a behavior problem,” “unmotivated,” or “not intelligent enough.” ADHD is medically and legally recognized as a treatable yet potentially serious disorder, affecting up to nine percent of all children, and approximately four percent of adults. Today, children with ADHD are eligible for special education services or accommodations within the regular classroom when needed, and adults with ADHD may be eligible for accommodations in the workplace under the Americans with Disabilities Act. CHADD is a success story, inspired by the desire of countless parents to see their children with ADHD succeed. From one parent support group in Florida, the organization grew dramatically to become the leading non-profit national organization for children and adults with ADHD. The organization has a small national staff, which manages the day-to-day responsibilities, while its Board of Directors sets policy and oversees the organization’s well being. The organization is composed of dedicated volunteers from around the country who play an integral part in the association’s success by providing support, education and encouragement to parents, educators and professionals on a grassroots level through CHADD chapters. Along with its growth in membership and reputation, CHADD has retained the passion and commitment of its founders.
ADHD in Adults The Mission of ADHD in Adults is to educate primary care providers on the screening, diagnosis and care of adult patients with ADHD. It is only recently that ADHD in Adults has been recognized as a legitimate disorder that begins in childhood, and almost 70% of the time, continues into adulthood. There are approximately 10 million adults in the United States with ADHD. Only 10% have been diagnosed and treated. ADHD is a serious disorder that, untreated, can wreak havoc on families, results in high rates of divorce, job loss, life-threatening accidents, and lower achievement levels and income. The annual economic cost of ADHD, in absenteeism and lost productivity is estimated at $100 Billion a year. Pharmaceutical and non-pharmaceutical treatments have been researched, developed into protocols, and proven safe. Our goal is to now bring the screening, diagnosis and treatment of ADHD into the primary care office where the broadest number of patients can be treated efficaciously.
American Professional Society of ADHD and Related Disorders APSARD is an organization consisting of a broad spectrum of allied mental health experts working to improve the quality of care for patients with ADHD through the advancement and dissemination of research, and evidence-based practices. APSARD will fill unmet education and training needs for healthcare professionals helping patients with ADHD, from childhood through adulthood.
ADDitude Since 1998, millions of parents and adults have trusted ADDitude’s expert guidance and support for living better with ADHD and its related mental health conditions. Our mission is to be your trusted advisor, an unwavering source of understanding and guidance along the path to wellness.
Center for ADHD Awareness, Canada CADDAC is a Canadian national charitable organization dedicated to improving the lives of those with ADHD through ADHD awareness, education and advocacy. While many websites offer basic ADHD information on what ADHD is and how it is treated, we have tried to go a step further and offer additional information and support. We have created information packages for a variety of stakeholders, adults, parents, adolescents with more to come, under the tab, “Getting Started” for those new to ADHD. The website also offers information on advocating for your child or yourself. Our hope is that the site will be an easy to use source of up-to-date medically accurate ADHD information for everyone interested and impacted by ADHD. In addition, it will be closely linked to our social media platforms where issues and concerns can be shared. Caregivers and those impacted by ADHD already feel isolated so moving forward we will be implementing additional platforms for discussion and interaction.
Canadian ADHD Resource Alliance CADDRA is a Canadian non-profit association. We are a coalition of health professionals who support patients with Attention Deficit Hyperactivity Disorder (ADHD) and their families. As leaders in the field, our members conduct research, treat patients and write the Canadian Guidelines on ADHD (4th edition, 2018). The guidelines include the CADDRA ADHD Assessment Toolkit which allows front-line clinicians to conduct a standardized overall assessment. CADDRA provides training and support to health professionals about ADHD. CADDRA – Canadian ADHD Resource Alliance – is an association that supports health professionals in the assessment and treatment of individuals with ADHD through education, guidelines, advocacy and research.
ADHD Foundation Neurodiversity Charity, UK We work in partnership with agencies across all public services and business sectors, to create a paradigm shift in health, education and employment. Working with Government, our partner agencies and service users, we aim influence policy and provision for the benefit of all; reduce dependency, empower and enable the neurodiverse population to achieve their potential and improve life opportunities.
Center of Excellence in ADHD and Related Disorders, Icahn School of Medicine at Mount Sinai, USA The Center of Excellence in ADHD and Related Disorders supports both medical and laboratory studies which represent a critical link between basic and clinical science, often referred to as “translational research.” Translational research is that which can be quickly applied to practical patient treatment. Below is a sampling of studies that we have completed or are still conducting into attention-deficit/hyperactivity disorder (ADHD).
Center for ADHD Research, Oregon Health & Science University, USA Welcome to the Center for ADHD Research! OHSU established an ADHD research program in 2009, in the Department of Psychiatry. The program became a national leader in this field and officially became the OHSU Center for ADHD Research in 2019. Our mission is to identify causes and find solutions that will create hope for ADHD and mental illness. The work we do will directly help those suffering from ADHD. ADHD is a developmental condition. Individuals who suffer from it experience extreme inattention, disorganization, overactivity, and impulsivity. Associated challenges include difficulties with anger, risk-taking, planning, being disorganized, and feeling unmotivated. Other more subtle physical signs may be present, such as weak motor control, language or speech problems. The center seeks breakthroughs in several areas of investigation from genes to brain to behavior. These areas of work are described throughout the site. Please explore this website to learn about our work. We are excited and optimistic about the prospects for continued rapid progress.
International Dyslexia Association Today IDA membership exceeds 10,000 teachers, other professionals, individuals with dyslexia, and parents. We have 42 branches in the U.S. and Canada and 24 Global Partners across the globe. Our annual international conference has grown to an exciting meeting of several thousand diverse participants from all corners of the globe. The mission of IDA continues to be the same as the mission embraced by the early Orton Society pioneers – seeking to study and treat dyslexia for the benefit of those with dyslexia and their families.
European Dyslexia Association EDA is a European non-governmental umbrella organisation for national and regional associations of people with dyslexia and other specific learning differences, children’s parents, professionals and researchers. It was founded and legally established under Belgium law in 1987 in Brussels as an international non-profit association by representatives of ten national dyslexia associations. It is the platform and the Voice of the people with dyslexia and so called ‘Specific Learning Difficulties’ in Europe. The EDA currently has regional and national Effective Members in 21 EU countries plus Switzerland, San Marino, Turkey and Norway and Adherent member organisations; in all 40 member organisations in 25 European countries. The EDA is a Non-Governmental Organisation (NGO) in official relation with UNESCO; a Full Member of the European Disability Forum (EDF); and has Consultative Status with the International Federation of Library Associations (IFLA).
Ελληνική Εταιρία Δυσλεξίας Η Ελληνική Εταιρία Δυσλεξίας είναι η πρώτη οργάνωση στην Ελλάδα με αντικείμενο τις μαθησιακές δυσκολίες. Διατηρούμε μέχρι σήμερα τον τίτλο Ελληνική Εταιρία Δυσλεξίας τόσο για ιστορικούς, όσο και για λόγους ευρείας χρήσης του όρου «Δυσλεξία» στο χώρο της εκπαίδευσης. Είναι μη-κερδοσκοπική-φιλανθρωπική οργάνωση, της οποίας τα μέλη εργάζονται εθελοντικά για τους σκοπούς της. Ιδρύθηκε τον Μάιο του 1984 από μια ομάδα γονέων που πλαισιώθηκαν από την πρώτη στιγμή από ειδικούς επιστήμονες, ψυχολόγους, εκπαιδευτικούς και ιατρούς. Μεταξύ των ιδρυτικών μελών ήταν ο καθηγητής Ψυχολογίας του Πανεπιστημίου Πάτρας κ. Κώστας Πόρποδας, το ζεύγος Τζένης και Σπύρου Ορνεράκη (γνωστού σκιτσογράφου και δυσλεξικού), η φιλόλογος με μετεκπαίδευση στον σχολικό επαγγελματικό προσανατολισμό κ. Αλίκη Τζεν και πολλοί άλλοι. Ακριβώς επειδή ουδέποτε υπήρξαμε αμιγώς σύλλογος γονέων, μπορέσαμε να αποφύγουμε την εσωστρέφεια άλλων παρόμοιων συλλόγων και να επεξεργαζόμαστε τα ζητήματα των μαθησιακών δυσκολιών όχι απλώς ως βιωματικώς εμπλεκόμενοι, αλλά και με την απαραίτητη διαύγεια και ψυχραιμία του «τρίτου ματιού», με την επιστημονική καθοδήγηση έγκυρων και καταξιωμένων επιστημόνων.
British Dyslexia Association The British Dyslexia Association (BDA) has been the voice of dyslexic people since 1972. We are a membership organisation working to achieve a dyslexia-friendly society for all. We aim to influence government and other institutions to promote a dyslexia friendly society that enables dyslexic people of all ages to reach their full potential.
The Australian Dyslexia Association ADA is an Incorporated Non-profit Association (IA37281) and Government registered as a Registrable Australian Body (ARBN 147 524 347). ADA are concerned with the well being, identification and educational intervention of all who struggle with aspects of spoken and written language.
The ADA believes that all individuals with dyslexia or a related difference deserve the right to understand their learning difference and have access to evidence based instruction. The ADA supports and provides accredited training in evidence based instruction with the addition of a multisensory component. Direct, explicit and structured language instruction with a multisensory component can assist all students including those with dyslexia and related difficulties.
Dyscalculia.org Dyscalculia.org is a nonprofit educational organization dedicated to advancing understanding and treatment of specific learning disabilities in mathematics, AKA dyscalculia. Dyscalculia.org aims to provide free public information about math learning disability: history, terminology, science, research, treatment, causes of innumeracy; best practices for diagnosis, treatment, teaching and learning; relevant laws, rules and protections; school, self and organizational advocacy; and access and accommodations across the academic lifespan. Dyscalculia.org also aims to develop science-based multimedia instruction on dyscalculia for students, teachers, administrators, parents and professionals. Dyscalculia.org will develop through collaborations and partnerships, free or nominal-cost, multimedia interactive, computerized programs to remediate dyscalculia in affected children and adults. Dyscalculia.org will provide training in the diagnosis of dyscalculia and proper prescriptive programming.
Brain Development & Education Lab @ Stanford University, USA Our mission is to both use neuroscience as a tool for improving education, and use education as a tool for furthering our understanding of the brain. On the one hand, advances in non-invasive, quantitative brain imaging technologies are opening a new window into the mechanisms that underlie learning. For children with learning disabilities such as dyslexia, we hope to develop personalized intervention programs that are tailored to a child’s unique pattern of brain maturation. On the other hand, interventions provide a powerful tool for understanding how environmental factors shape brain development. Combining neuroimaging with educational interventions we hope to further our understanding of plasticity in the human brain.
Dyslexia Center @UCSan Fransisco, USA The mission of the UCSF Dyslexia Center is to eliminate the debilitating effects of developmental dyslexia while preserving and even enhancing the relative strengths of each individual. In addition, we aim to develop best practice protocols to implement individually catered interventions in classrooms throughout the country.
The Yale Center for Dyslexia & Creativity YCDC is the preeminent source of cutting-edge research, informed advocacy and trustworthy resources to help those with dyslexia reach their full potential. The Center’s tools and resources are used widely by parents, educators and those with dyslexia to advocate for greater recognition and support for dyslexic children and adults. YCDC builds awareness in all communities and mobilizes grassroots efforts to close the reading achievement gap for all students, including low-income students of color, through policies that help dyslexic children succeed. The Center also showcases the remarkable success stories of adults with dyslexia, including writers, scientists, celebrities, and government and business leaders. YCDC was founded in 2006 by Drs. Sally and Bennett Shaywitz, world-renowned physician-scientists and leaders in the field of dyslexia research and diagnosis. Dr. Sally Shaywitz is the author of Overcoming Dyslexia, the seminal book on understanding and supporting those with dyslexia.